Sunday, January 31, 2010

Hello, from Oncology

Isaac was admitted into CHOC on Friday. His little body is not tolerating the Chemotherapy, and has lost a considerable amount of weight. I will update when I can (little - no internet).

Thoughts and prayers are very much appreciated during this rough time.

Wednesday, January 27, 2010

Chemo treatment #4 down - 15 more to go & Kidney U/S

Two words. Long. Day.

Isaac had two appointments today. Ultrasound at 9:30 a.m., and chemo at 11:30 a.m.

I dropped of Sheldon at school at 7:30 a.m. (Izabella was sick, so she stayed at home with Nannie and her Auntie Lissa), then myself and Isaac hopped on the 91 freeway.

We had to be in the Radiology unit - second floor - by 9:00 a.m. to check in. I got up to the receptionist, and she proceeds to ask me if I went down to the first floor to register first. Umm, no. No one told me that I had to go down there and register. I kindly explained that 1.) I would rather not take my immunosuppressed child up and down, here and there to each floor, when all you can hear in the waiting room is coughing and sniffing, and 2.) we are in insolation. She agreed, and called up someone from registration to come to us. Thank you! She sat us at a nice little desk - away from all the sickies. Registration man comes, we are registered. They ever so kindly put us in front of all other waiting patients and we are called in shortly after.

My little man was GREAT during the whole procedure. She got an awesome scan of his kidney.

We finished up pretty quick and we were out of there by 9:40 a.m., with nearly 2 hours to burn. Yeah. 2 hours. We picked up some brekkie/lunch, and drove across the street to the OPI clinic, where we sat in the car and waited. And waited. Isaac thought it was the funniest thing to grab my straw and yank it out while flinging lemonade all over the car in the process. You didn't notice how much he flung everywhere because it was dark in the parking structure, but when we left and got out into daylight - oh my gosh - there is stickiness everywhere.. even on the dashboard and windshield! Have no fear, we will have Daddy clean it.


By 11:15 a.m., I was done being in that car as much as Isaac was...


so we went in the clinic a tad early. We get our "Hi, Isaac!" but this time, the nurse says, "meet you in room (closet) 17. Do you know the code?" Me - "no". "Oh! It's 1-2-3-4-5". Wow, we qualified to find out our closet secret code! Yippie skippie!

Vitals:
Blood pressure - 101/59 (yeah!)
Weight - 10.21 kg (up from last week!)

Nurse Sabrina is back around 12:00 p.m. and sets up a 15-minute 4 mg Zofran drip.

Mary, the NP, comes in at 12:45 p.m. and chats with us for a bit. The scoop on the poop. The poop was negative for all 3 cultures. Most likely the diarrhea is chemotherapy-induced.

Chemotherapy tends to kill fast-growing cells. The cells in your hair, the cells in your bone marrow that make your blood, and the cells that line your intestines are among the most rapidly growing cells in your body. Therefore the typical side effects of chemotherapy include hair loss, decreased blood counts and damage to your intestinal lining. If your chemotherapy causes sufficient damage to the lining of your intestine, diarrhea may result.

She asks about his stools, and I let her know that they are still pretty watery. She puts in an order for him to receive 100 ml's of fluid before his chemo transfusion. This fluid was pushed through over a 1 hr time frame. Fun times. Isaac screamed. The. Whole. Time. He was so tired by this point. Tired of being in the closet, tired of being held, tired because he was so off his routine and was waaaaay late for his nap. Keep in mind, we left the house at 7:20 a.m., and we arrive in the OPI at 11:15 a.m., and our appointment was at 11:30 a.m., and Mary did not come in until after 12:40 p.m.



Fluids are finally pushed through, and nurse S is back with chemo V & A. When she removes the line in his port, she notices there is a little discharge, a.k.a. puss on the outer edge of the access point. Greeeeeeeaat. She advises us to keep a very close watch on him AND his port, watching for any signs of infection and for a fever.

In the end, we are out of there at 2:30 p.m. and do not arrive back home until after 3:30 p.m.

You wanna hear some good news? His ultrasound report came back STAT and his remaining right kidney is functioning PERFECTLY!!

Tuesday, January 26, 2010

Green light = GO

We were scheduled to arrive in the Oncology clinic this morning at 8:30 a.m., so they could draw routine labs since it is the dreaded 3rd week. Third week = both V & A treatments. When he receives V only, they draw his blood same day (Wednesday), directly before they push through chemo medicine. But, when he has to receive V AND A, they have to make sure his blood counts are okay ahead of time since the A wears down his blood cells like nobody's business.

We arrive and sit in our nice little isolation waiting room. Holy moly was it HOT in there. They had that heater blasting! Little Einsteins comes on, and gathers Isaac's attention for the few minutes that I was checking him in and signing the necessary paperwork. The nurse comes to the window shortly after and lets us know she will be right with us. Okay! Funny, because Isaac never even looks at the television at home.

Less than 10 minutes later, she comes to us with her little tray of goodies. She accesses his port, with ease, no flinching. Draws blood, and gives me the option of leaving his line accessed. I had to think about it for a few, then decided to just leave it for tomorrow's chemo. Isaac gets a little anxious during port access, so I thought I would save him a little nervousness for 1 day. That way, all she has to do is reach under his shirt and grab the 6 inch IV cord, rather than having to tear off the Tagaderm-film, wipe off the EMLA, douse him with alcohol and POKE. By step 3 (alcohol) he is already starting to become Mr. Squirmy Wormie, so by the time she actually pushes through the chemo, he is full on kicking n' twisting like an alligator.

Came home, and watched him like a hawk so he would not discover his new appendage. He did great! I was worried that we would get it caught on something, but we made it through the day.

Blood counts came back great! We are a go for tomorrow.

ANC: 4,600
WBC: 8.1
Hemoglobin: 10.5
Platelets: 547

Pictures, January 26



Sunday, January 24, 2010

3rd & 4th day - post chemo

Currently, Isaac's chemotherapy falls on Wednesday of each week. He seems to tolerate it well considering, until the weekend following. Saturday, he starts feeling the effects, but by Sunday, it's all down hill. Saturday, he was a little bit cranky. He ate a teeny bit of random food that we offer, but no meals. Sunday the 24th, was the worst I have ever seen him. He was super clingy, and was very whiny. He was NOT feeling well at all. His color was diminishing - he looked very pale, and he had dark circles under his eyes.

Earlier that a.m., he had the worst diarrhea blowout. It literally climbed to the back of his neck. Let me remind you, he has had diarrhea for 2 + weeks! (We took in stool samples, but we are still awaiting the final culture results...) I called the on-call Oncologist, but she didn't really help much, and just advised me to watch him closely.

He is doing considerably better today. He ate a little bit of chicken soup, and some yogurt. He played a bit today, as well.

Tomorrow a.m. we go in for labs. Wednesday we have two appointments. First for his kidney ultrasound due to the high blood pressure, and then he has chemo (given his counts are okay).

He is sleeping soundly... but not for long. He tosses and turns ALL night long.

Thursday, January 21, 2010

I'm standing!

They mentioned to us at our Oncology meeting that Isaac may become developmentally delayed due to the Chemo and it's nasty side effects...

Well, not our boy! Check out his new trick...

"Hey Ma! I'm standing!"


THE poop scoop

(Literally!) I had to scoop Isaac's poop from his diaper earlier this a.m.

I ran it down to the lab pronto, only to be told that we need more POOP! The nurse at CHOC only gave me 1 cup for the 3 tests, but we needed more. The lab lady gave me one more cup for frozen poo, and 1 tubular vial filled with red liquid.

So. We wait. C'mon poo! (Never thought I would be looking forward to poop, especially since I have to dig through it.)... OOOOOOHHH! I just realized she did not give me any additional scoopers! Guess I have to get crafty.

Wednesday, January 20, 2010

Chemo treatment #3 down - 16 more to go

Another 4:00 p.m. appointment. EMLA was applied at 2:35 p.m., and myself and Mr. Man were on the rainy road by 2:50 p.m.

We arrived at CHOC at 3:40 p.m. (Thank you crazy, rainy freeway! So much for my idea of leaving later...) Isaac cried once the car turned off, and I smelled an all too familiar smell - poop. I grabbed him from the back and layed him down on the passenger seat to change him. Not an easy task, let me tell you. (Don't tell Daddy that we got poopies on the leather, please). We finished up, and got out of the car. Threw away the diaper (a mistake.. will explain later..) and went inside the OPI (Outpatient Infusion) clinic, 2nd floor. There is usually a lady sitting right in front of the hallway, behind a table that has masks, hand sanitizer, and other goodies - but she wasn't there. She doesn't allow anyone to pass without knowing the who, when, why and what - and cleaning your hands via sanitizer. (Maybe she didn't want to come out in the rain?)... So, I had to dig deep into Isaac's diaper bag and pull out a clean mask. Got the mask on the squirmy worm, and off down the hall we went.

Walked up to the desk. We don't even have to sign in. They say, "Hi, Isaac!" and wisk us away into the isolation "closet". We got a bigger, upgraded "closet" today, yeah!

Nurse takes vitals. His BP reading was 148/74. Great. She measured it again, and it was 116/66. Still a tad high for a 9-month-old.


She takes his height... by laying him on the half reclined chair, and marking from head to toe. 29 1/4 inches (+/-) Close enough! We then exit our "closet" and walk down to the scale. Surprisingly, masked Isaac does not scream on the way there. Weight: 9.6 kg. He is down a few ounces from last Wednesday. He whines a bit on the way back. (Darn mask!)

Wait for bit, then the nurse comes in and asks if the doctor has been in yet. "Nope!"



Wait a bit longer, and doctor comes in. This time we saw a lady, I am guessing a NP, by the name of Mary.

She asks if they have contacted me for the kidney ultrasound, and I reply, "No, they have not." Oops. Apparently, they were supposed to contact me last week to schedule an appointment. It is a STAT ultrasound, so she was a little irritated that I did not receive a call. She lets me know that I WILL be receiving a call today to schedule. She is concerned about his blood pressure, and I mention that I *think* he still may be having headaches because he is still holding his head, but now he has been banging it (his head) against random objects. She asks the nurse to come back in to check it - 88/60 - better!

To be 100 percent honest, I am freaked about this ultrasound. The last time he had a kidney ultrasound, I was told he had cancer. I am scared that the blood flow to his remaining kidney is not adequate, resulting in his high blood pressure. It is so hard to think positive, but I know I need to, for my sake, but mostly for Isaac. Isaac has also been having diarrhea. She asks when the last time he had a bowel movement. I told her a while ago, in the car. She asks for the diaper. Doh! "I threw it away!" I guess I should have kept it, but who'd have known. That thing was stinky and I wanted to get rid of it A.S.A.P. Carrying it around in his diaper bag was not on my mind at that point. So, they send me off with a cup to take a sample from home and deliver it to our local laboratory, STAT. One of the very common side effects of chemo is constipation. They even send you home with stool softeners. For some unknown reason, Isaac's stools are the total opposite. They are doing 3 tests: stool culture, stool cdiff, and stool rota virus.

She sends the nurse in to access his port and draw labs, but advises her to hold off on the Vincristine (V). She then leaves and says she will be back.

Nurse comes in with her box of tricks. (This is what chemo "looks" like. The syringe at the top with the white label, and the 'toxic' green label is Vincristine - The liquid is clear. The 2 white syringes are saline, and the yellow syringe is Heparin).


By this point, it has been a little over 2 hours since we applied EMLA. The cream was seeping through the top of the Tegaderm-Film that we place over it, and was nearly 100% absorbed. I was starting to get a little worried. I have a huge fear of Isaac feeling the needle that enters his chest. I mentioned this to her, and she assured me that it lasts a good 4 hours after applied. Ok. She accesses his port, and thankfully, not a flinch. She draws blood for his routine labwork, places a nice little comfy film over his port (needle, and line hanging freely) and leaves. We wait for a good 25 minutes, and finally Mary peeks back in to let me know that we definitely need to get the ultrasound done, and check his poopies - but we are good to go.

Nurse is back, and finishes what she started and pumps him full of V. He actually did very well this time, with minimal squirming! Removes the line, and places a Spiderman bandaid over his port.

Next appointment is on Tuesday to draw labs. If his counts come back too low, then they will call me and let me know it's a "no-go". Otherwise, we will be back in the OPI on Wednesday for V AND the dreaded A.

Monday, January 18, 2010

If you find his appetite, please let us know!

Poor little dude is NOT interested in FOOD. He looks at it with such disgust! There are very few things that he will even allow near his mouth, which include, and ARE limited to the following: flour tortillas, yogurt, cheese, pinto beans, and mashed up bananas. Really, it is a hit and a miss.

He does not like any sort of 100% juice, but will drink an occasional bottle of Gatorade and definitely will chug down his formula. (Thankfully!) He is still at his current weight of 21-pounds, so I guess we are not doing too bad.

To date, he has vomited 4 times, and each of those times was while or after he finished a meal/bottle.

I read, and I truly believe that cancer children should not be limited to what they eat. If they want a banana split for brekkie - hey, go for it. Calories first, nutrition second. The after effects, and bad forming habits can be fixed later! I am willing to feed him candy and cake if it will make him happy - to an extent, that is. : )

THE Chemo Cocktail

For a better understanding of all this madness...

Isaac will be receiving chemo for a total of 22 weeks (7 cycles - 3 weeks per cycle - day 1 being surgery day), with the last 3 weeks being drug free and considered a "recovery period". Before cycle 5/week 13, Isaac will be scheduled for a routine CT scan to be sure we are in the clear and there is NED. (No evidence of disease).

He will be on a combination of two chemotherapy drugs:
Vincristine and Dactinomycin (Actinomycin-D)

Vincristine = V
Dactinomycin = A

Every week, Isaac will receive V.
Every 3rd week, Isaac will receive both V & A.

Our current Chemo day is Wednesday's. This day may change somewhere down the road, since his blood counts are determined on whether he will receive chemo that week or not. If his counts are too low, they will postpone a few days to a week to allow his counts to replenish.

After treatment, Isaac will receive long-term follow up care, which includes CT scans every 3 months for the first 2 years, then every 6 months for the following 2 years, then every year thereafter. He will also require additional testing, such as abdominal ultrasounds, xrays, blood tests, urine tests, etc.

Thursday, January 14, 2010

I'm 9-months-old today!

: )

Pictures to come...

Wednesday, January 13, 2010

Chemo treatment #2 down - 17 more to go


Today's appointment was at 4:00 p.m. It is very difficult to schedule accordingly, given the fact that the other kiddos school schedules are hectic. Izabella and Sheldon go in from 7:45 a.m. - 12:50 p.m. on Wednesday's and Alexis goes from 12:00 p.m. to 3:00 p.m. So, I have a tiny window in the morning, but given that CHOC is 30 miles away, and the earliest appointment is at 10:30 a.m. it is impossible to get there and back in time to drop off Lexie / pick up the other 2. I removed Alexis from Pre-K early, and dropped them off with Auntie. I apply EMLA, and Mommy and Isaac jump on the freeway at 2:50 p.m.


We arrive at Children's at 3:30 p.m. with some time to spare, so I just sat in the car and let Isaac sleep a bit. Didn't I get there 30 minutes early last week, too? Hmm.. maybe I should leave later! ; )

I took Isaac in his old infant carseat, and covered the top with a blanket... hoping this would be easier than trying to keep a mask on him while walking to the OPI center. Yeah, sure. He screamed. He did not like being under that blanket, and most likely did not want to be in that seat equally as much. So much for my plan!

We check in, and they take us back to our room. The treatment rooms are code locked, so it feels like you are sitting in a huge closet with a chair and a flat-screen T.V. They have to enter their "5-digit" code to enter the room. The nurse takes his BP. 148/62. Great. Just great. Lately, Isaac has been holding the back of his head whining. It is very possible that his BP has been high and it is causing him to have frequent headaches. Weight check is next. We have to leave our "closet" and travel down the hall - masked, screaming Isaac in tow. He weighed in at 9.7kg. We travel back down hall - masked is ripped off at this point. A bit later, Dr. Sam Esparza comes in. (Awesome guy..) He mentions his high BP, and is going to order a kidney ultrasound to make sure the blood flow to his remaining kidney is as it should be. If the blood flow is not within normal range, it will make his BP raise. What happens in that case, I don't know. It is his only kidney he has left and that little bad boy better be in 100% working condition.

All is well, otherwise, and he gives the green light for the transfusion. Today, he receives Vincristine only. Yeah!

Good news to report - His LOH came back NEGATIVE!!

Tumor-specific loss-of-heterozygosity (LOH) for chromosomes 1p and 16q identifies a subset of Wilms' tumor patients who have a significantly increased risk of relapse and death. LOH for these chromosomal regions can now be used as an independent prognostic factor together with disease stage to target intensity of treatment to risk of treatment failure.

Nurse comes in a bit later, with her box of tricks, and starts to work on my little man. If only this child would sit still! But, what can you expect from an 8-month-old? I took along two new Hot Wheel cars that his big brother received for Christmas. (Isaac does not play with Hot Wheels, but I thought it may be a good ploy...) I had them ready to whip out once the nurse came in with his Chemo medication. Once she got there, and got ready, I took them out. She accessed his port, (not a flinch) and he looked at the cars for 3.99 seconds and forgot about them instantly. Thank goodness the port access and transfusion only takes a matter of minutes. I don't know what I would do if he had to have that needle in there any longer. My little guy is strong! It's such a struggle to hold him in place.


Wednesday's are a mixed emotion. They are a downer because I dread taking Isaac to have him pumped full of the toxic Chemo medication, but then they are one step closer to him being cancer free. It's a lose - win situation. This last week was rough for him - Thursday and Friday were great, with Saturday - Monday being the worst. He refused to eat, and was very nauseated. His mouth was sore for a few days, as well. Hoping this week is easier on his tiny body. Cancer sucks!

Sunday, January 10, 2010

Pictures, January 10

Amidst feeling yukky, he still manages to give me some smiles!





Saturday, January 9, 2010

Another yukky day

If I could take his place, I would in a fraction of a second.

He is having what I think is, mouth pain. Mouth pain is a common side effect from the Chemo drugs. He is drooling so much, and he is starting to refuse food. Isaac is still drinking, thankfully.

Poor guy has just been downright cranky, and so not himself. His normal daily routine is all wacky, so he is napping at all different times of the day. Something that Mommy is not used to!

We are only one Chemo in. There is a long road ahead of us, and he is already feeling the effects of the drugs.

Boy in the bubble

I find it extremely hard to not turn him into that boy. Fighting a infection for a normal child is a challenge, let alone, fighting an infection in a immunosuppressed chemotherapy patient is downright scary as all heck! I have been keeping him indoors, in our safe haven we call home. I do take him out daily to pick up the kids from school, but that merely consists of: walk to car, wait for kids IN car, walk back into the house. I am terrified of taking him into a public place with a actual "roof" attached. (No fresh air).

They drill into your head, a million gazillion times it seems at each visit, that fevers are almost a guaranteed admission into the hospital. They do not take fevers lightly. Again, I am terrified! (When have I not been scared on a daily basis since that day in December?)

We actually walked out of the car on Friday... I felt bad for my other 3 kids having to endure being trapped at home, so I let them play at the park behind their school. I was sitting on a bench with Isaac, and this old lady sits down and starts chatting with us. I wasn't really listening to her, because all I could think of was keeping him away from arms reach so she wouldn't touch him. How sad is that?!

I cannot wait for the day, when this Chemo business is done and over with, so we can get on with our lives and Isaac may grow up like a normal toddler that he should be.

Friday, January 8, 2010

THE Side Effects

Are starting to take place. Today was a so-so day, with good moments and bad ones (mostly bad). Isaac has been uber cranky, and I *think* he is feeling nauseated. Why do I say, "I *think*"? ... Because he cannot communicate to us, so we have to guess. He has not eaten much today, and he is drooling like mad, and gagging here and there. Tears at my heart. I gave him a dose of Zofran earlier this afternoon, hidden in a orange creme popsicle. (It is in pill form..) From now on, I am going to continue to the Zofran regardless, for the first 2-3 days after Chemo. The dose is scheduled every 8 hours, so he would be taking it once in the a.m., and once in the p.m. I would much rather prevent him from becoming sick, than wait for it to hit him like a ton of bricks.

Wednesday, January 6, 2010

Chemo treatment #1 down - 18 more to go

Busy, busy day today. First things first. I braved taking all three of my other munchkins into the Pediatrician's office today to receive the h1n1 vaccination. Since Isaac is going through Chemo, the very last thing we need is for him to get sick - especially with the h1n1 virus. Isaac had his vaccination yesterday at the Oncologist's. Dr. Esparza, Isaac's primary Oncologist highly recommended it, so I took his advice whole heartedly. Oh, boy, oh boy. The joy! They all seemed okay with the fact - they even had the order of who was getting it first, second and third... but when they lady actually came in with the shots, they all flipped! Here I am, with Isaac, trying to calm them down. Alexis refused to sit on the exam table, Izabella was shaking and Sheldon kep telling me, "Why you making me do this!". I felt horrible. All is better now, thanks to McDonald's $1 sundaes. (But, we have to go back for a booster in 1-month. Wish me luck!)

On to Isaac's Chemo...

We applied them EMLA cream at 12:15 p.m., and we were out of the house by 12:25 p.m.


We arrived at CHOC's OPI unit at 1:10 p.m., a little early for our 1:30 p.m. appointment. They weighed little man (9.65 kg) and immediately put us in a room - thank you, isolation! (He is isolated because he tested + for MRSA).

The nurse comes in and takes his vitals:
BP - 116/60
Temp - 36.6 C

She leaves, and comes back with a boatload of snacks, that soon enough, ended up crunched all over the floor. We sit and wait, watching a little TLC on the T.V.



A little bit later Dr. Shen comes in to do a quick check, and before we knew it, another nurse came in with a little box of Chemo goodies. Being the paranoid Mom that I am, I made her show me how they got the dose amount, and she also showed me the syringes with the same dosage. Hey, you never know... She proceeds to access his port, and he let out a little whine. It's hard to tell if he is actually in pain, or just a little ticked off because I have to hold his tiny arms so he does not try to yank out the needle. It seemed like she used a gazillion syringes full of stuff, but each time she uses a different med, she has to flush his port with saline. She first gave him the Zofran for nausea. Then came the Dactinomycin (which we will call "A"). The A is red. They call it the red devil. This is the medication that has the most side effects - the one that will make him nauseated. After that was the Vincristine (which we will call "V"). Following that, was the Heparin to keep his port from clogging up. He got really squirmy, and it was making me so nervous. Imagine an 8-month-old, squirming like a little worm, with a nice size needle just hanging out of his chest. They do not gauze it down because the total time from start to finish is actually less than 10 minutes. We just had to hang tight, and Mommy gritted her teeth. Finally, we are done, and she tops him off with a Spiderman bandaid. Thanks to Mr. Squirmy Wormie, the 10 minutes that it took to administer the medications, seemed like 30 minutes.

He has been awesome since then. No side effects to report. He devoured all his dinner, and has been playing like normal. They do say that it can take up to 3 cycles to start feeling the effects, and his hair will start to fall out between week 2 and 3 as well. Isaac's hair is just starting to become curly, so I will be really sad to see it go... but... it will grow back.

Tuesday, January 5, 2010

Pathology - Oncology - Chemo

Today was the day we have been waiting for since December 19th - diagnosis day. The wait has been absolutely agonizing.

Final Pathology results:

Stage II Wilms tumor - Favorable Histology (Thank you, God!) His tumor is considered a Stage II because the tumor traveled into a small vessel within the renal sinus, but was completely removed with surgery. We do not know, however, if there are tumor cells lingering behind. That is where the Chemo comes in. The Chemo will do a clean sweep, and hopefully (cross your fingers, toes, arms and legs - that it kills everything that is left "behind").

We are still waiting for some other pieces to the Pathology puzzle, which includes the results for the LOH screening. The Oncologist is predicting that they will be negative, but G forbid they are positive, we will go back in for a meeting to discuss other treatment options.

We are starting tomorrow with - Treatment Regimen: EE4A


100% outpatient! We are stoked. The original plan was to have him admitted every 3 weeks for 3-5 days, but they changed up the treatment regimen last week. Soooooo happy about that!! Leaving the other 3 kiddos once a month did not appeal to me at all. I really, REALLY dislike leaving them. (But, of course I will do anything in this world for my little man to be healthy again..)...

They accessed his port today for the first time since it was implanted. I was a tad bit worried for him! They applied the EMLA cream over his port site about 40 minutes - 1 hour before. The nurse cleaned his chest up, and then poked him. He didn't even flinch... but I did!!. Talk about a heart stopper watching them insert a needle into his little chest. After she was completed, she gave him a Transformers band aid. Cool beans!


We came home with 4 prescriptions. A huge tube of EMLA cream to apply before we leave the house for Chemo, Bactrim (antibiotic) to take every Monday, Tuesday and Wednesday to prevent infection, Zofran (anti-nausea), and Senna (stool softener) for when the little mister needs to poop! Talk about overwhelming.

On a side note: His surgical sites are healing up great!

Monday, January 4, 2010

Post-Op Urologist Appt

Went without a hitch.

Was in-and-out quick, except for the sign in and fill out the "routine paperwork". Isaac loves to make it a difficult task for me to write his name and birthdate - let alone 5 pages of crazy questions with crazy answers!

All looked great with his incision spot, and he is healing nicely. His incision on his neck is spitting out 2 stitches. Looks a little odd, but she convinced me not to worry.

Tomorrow is the meeting with the team of Oncologists. I am n-e-r-v-o-u-s.

Friday, January 1, 2010

Happy New Year

Last year was going great, up until the last 2 weeks. This year is obviously just a long continuation of last months chaos, but I have faith that after this summer, the nightmare will be over and Isaac will be cancer free. Praying for a new year full of health, happiness and prosperity.