I find it extremely hard to not turn him into that boy. Fighting a infection for a normal child is a challenge, let alone, fighting an infection in a immunosuppressed chemotherapy patient is downright scary as all heck! I have been keeping him indoors, in our safe haven we call home. I do take him out daily to pick up the kids from school, but that merely consists of: walk to car, wait for kids IN car, walk back into the house. I am terrified of taking him into a public place with a actual "roof" attached. (No fresh air).
They drill into your head, a million gazillion times it seems at each visit, that fevers are almost a guaranteed admission into the hospital. They do not take fevers lightly. Again, I am terrified! (When have I not been scared on a daily basis since that day in December?)
We actually walked out of the car on Friday... I felt bad for my other 3 kids having to endure being trapped at home, so I let them play at the park behind their school. I was sitting on a bench with Isaac, and this old lady sits down and starts chatting with us. I wasn't really listening to her, because all I could think of was keeping him away from arms reach so she wouldn't touch him. How sad is that?!
I cannot wait for the day, when this Chemo business is done and over with, so we can get on with our lives and Isaac may grow up like a normal toddler that he should be.
Saturday, January 9, 2010
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Awww hon, I know how you are feeling because that is exactly how I felt for the first 3 years of Kayden`s life. It`s only been this past year that I have been able to relax. I can`t imagine how hard this is on all of you, but my older 2 kids never minded being home more and there are always ways to make it fun inside. I`m sure they`d rather be home and bored, then to have you an Issac be in the hospital. My thoughts are with you! (((hug)))
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