On to Isaac's Chemo...
We applied them EMLA cream at 12:15 p.m., and we were out of the house by 12:25 p.m.

We arrived at CHOC's OPI unit at 1:10 p.m., a little early for our 1:30 p.m. appointment. They weighed little man (9.65 kg) and immediately put us in a room - thank you, isolation! (He is isolated because he tested + for MRSA).
The nurse comes in and takes his vitals:
BP - 116/60
Temp - 36.6 C
She leaves, and comes back with a boatload of snacks, that soon enough, ended up crunched all over the floor. We sit and wait, watching a little TLC on the T.V.


A little bit later Dr. Shen comes in to do a quick check, and before we knew it, another nurse came in with a little box of Chemo goodies. Being the paranoid Mom that I am, I made her show me how they got the dose amount, and she also showed me the syringes with the same dosage. Hey, you never know... She proceeds to access his port, and he let out a little whine. It's hard to tell if he is actually in pain, or just a little ticked off because I have to hold his tiny arms so he does not try to yank out the needle. It seemed like she used a gazillion syringes full of stuff, but each time she uses a different med, she has to flush his port with saline. She first gave him the Zofran for nausea. Then came the Dactinomycin (which we will call "A"). The A is red. They call it the red devil. This is the medication that has the most side effects - the one that will make him nauseated. After that was the Vincristine (which we will call "V"). Following that, was the Heparin to keep his port from clogging up. He got really squirmy, and it was making me so nervous. Imagine an 8-month-old, squirming like a little worm, with a nice size needle just hanging out of his chest. They do not gauze it down because the total time from start to finish is actually less than 10 minutes. We just had to hang tight, and Mommy gritted her teeth. Finally, we are done, and she tops him off with a Spiderman bandaid. Thanks to Mr. Squirmy Wormie, the 10 minutes that it took to administer the medications, seemed like 30 minutes.
He has been awesome since then. No side effects to report. He devoured all his dinner, and has been playing like normal. They do say that it can take up to 3 cycles to start feeling the effects, and his hair will start to fall out between week 2 and 3 as well. Isaac's hair is just starting to become curly, so I will be really sad to see it go... but... it will grow back.
So glad that the first treatment went well Brandi. He is such a cutie! Hugs to you all!
ReplyDeleteI'm so glad he isn't experiencing any side effects right now. He is such a trooper. I had Adriamycin, which is also called the red devil (same family). Make sure they stay on top of the nausea. Lots of love to you!
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