Tuesday, January 5, 2010

Pathology - Oncology - Chemo

Today was the day we have been waiting for since December 19th - diagnosis day. The wait has been absolutely agonizing.

Final Pathology results:

Stage II Wilms tumor - Favorable Histology (Thank you, God!) His tumor is considered a Stage II because the tumor traveled into a small vessel within the renal sinus, but was completely removed with surgery. We do not know, however, if there are tumor cells lingering behind. That is where the Chemo comes in. The Chemo will do a clean sweep, and hopefully (cross your fingers, toes, arms and legs - that it kills everything that is left "behind").

We are still waiting for some other pieces to the Pathology puzzle, which includes the results for the LOH screening. The Oncologist is predicting that they will be negative, but G forbid they are positive, we will go back in for a meeting to discuss other treatment options.

We are starting tomorrow with - Treatment Regimen: EE4A


100% outpatient! We are stoked. The original plan was to have him admitted every 3 weeks for 3-5 days, but they changed up the treatment regimen last week. Soooooo happy about that!! Leaving the other 3 kiddos once a month did not appeal to me at all. I really, REALLY dislike leaving them. (But, of course I will do anything in this world for my little man to be healthy again..)...

They accessed his port today for the first time since it was implanted. I was a tad bit worried for him! They applied the EMLA cream over his port site about 40 minutes - 1 hour before. The nurse cleaned his chest up, and then poked him. He didn't even flinch... but I did!!. Talk about a heart stopper watching them insert a needle into his little chest. After she was completed, she gave him a Transformers band aid. Cool beans!


We came home with 4 prescriptions. A huge tube of EMLA cream to apply before we leave the house for Chemo, Bactrim (antibiotic) to take every Monday, Tuesday and Wednesday to prevent infection, Zofran (anti-nausea), and Senna (stool softener) for when the little mister needs to poop! Talk about overwhelming.

On a side note: His surgical sites are healing up great!

2 comments:

  1. Chastity "babygurl"January 6, 2010 at 6:31 AM

    OMG! Favorable histology?? thats the best it can be with a ton of consideration. I still wish that I can wish this away for your little guy (and your entire family too) It must be so difficult for everyone:( What you and your little guy are going thru has touched my heart in such a way. Being a mom of an 8 month old little boy myself (and 3 other kiddos) my heart aches for you. I pray for Isaac every single night and I cannot fall asleep until I do. I'm not sure if you feel comfortable sharing your last name with me, but I'd like to start a prayer chain for him through my Church. You can PM me at sheknows if you'd like. I post on April Sweet Peas under "babygurl" ((((HUGS for you and your precious baby)))) Ever since I saw your post....I am an avid reader of your blog....thanks for the update.

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  2. Awwwww I'm so happy you can have the treatment done on an outpatient basis. That is wonderful. I pray he does well. He is such a cutie!

    Oh and I have to say I am totally jealous....I never got a transformer bandaid after they accessed my port! lol

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